So much going on and so little time to write. 2/4 I received a call from the doctor that they wanted to move my surgery up…to that day. I had a lump removed from just above the knee joint that was making it terribly painful to move and cope with on an increasing basis. So at 8:00, I was rethinking my whole week and how to tell my boss I was having surgery at 3:30 that day without announcing it in our staff meeting which I ended up doing anyways that morning. I managed to watch most of the surgery… I was given the choice to and decided to watch the stupid painmaker say their final goodbyes. The path report was so so. Carcinoma wrapped around scar tissue. I went on 2/15 to get the stitches out but it hadn’t healed shut yet. We’re watching for infection now as the pain has taken a sudden increase again. I attempted (very poorly) to use crutches the first couple of days but it made me so sore upper body wise I quickly she’d them for a cane. Mostly I am limping along now at a pretty good pace. The cane is there when I need it. Thank God for pain meds for when my work day is over. For those who wonder how crazy I am… I went to the pharmacy first thing the day after my surgery to get gauze and bandages and ointment for the wound…instead of telling the pharmacy tech to have a nice day, I told her to have a nice trip…woops. I asked my friend for a ride that day to and from work but still managed to attend a mandatory training for our team. Thursday was harder. Seeing clients on crutches while attempting to carry your work brief case was an insane task! Thank God I had Friday off because I worked Wednesday!!! I was about dead on a doornail but had a full weekend planned with lots of celebrations.
We have survived the polar freeze here this past week with five days of work called off due to weather. Poor Al ( my dog whose nickname is Alcoholic because he can’t hold his licker) even got three new outfits and a set of snow boots to cope with the -40 degree windshield. He looked pretty hilarious in his multiple layers to go outside to do his duties. He wasn’t to sure about putting on his boots though. We have some pretty funny videos of him learning how to get used to them.
Today was the first day we had work since last Thursday but I had medical tests today to investigate two new lumps in my abdomen. I am praying that the tests results come back soon waiting is never easy. The results will determine what type of treatment I do next. Having cancer is scary at times. This has been one of those times. I never know quite what to say to others while waiting for test results so I usually don’t mention anything until I know something. I have been waiting to have a growth removed from my leg. Surgery is set for March. The pain though is growing exponentially and I am on a cancellation list. We may have to switch specialists in order to get it done sooner.
This week while attempting to juggle things and maintain my nonschedule of shoveling, snowblowing and warming up I completely missed morning meds every morning. That means missing my mood stabilizer and amtidepressant as well as medical meds. Knowing and doing are sometimes two entitely different things. So hopefully one day I will learn not to miss any medications.
As a social worker in the field of mental health for almost thirty years, I have had it drilled into me to leave my issues at the door when I arrive for work each morning. Having mental health issues myself over time has made this a difficult enough thing to work with. But now that I have lymphoma it has become a constant struggle on days that the pain is unrelenting or I just am exhausted or not feeling well. It is so much harder to drop myself at the door and not allow clients into my personal life even though they may eventually see it for themselves if I lose more hair, etc.
I know some of my clients couldn’t handle knowing and some could but I really struggle to say I am okay to them when I haven’t been recently. Ethics can be such a complicated thing. So for now I go on pretending to be okay for their sake.
I’m still waiting on prior auths with my new insurance. It seems like it is taking forever. I just want a status report on the lymphoma and to know where we are heading from here treatment wise. it could change a lot of things quickly.
Hope you all are well.
Sometimes it seems when you have chronic illnesses there is nothing worse than having to switch insurance companies in the middle of treatment. Right now I am in a waiting game because I have new insurance and can’t get the treatment that I need because new authorizations aren’t in place yet with the new insurance company.
During the last few days of my old insurance coverage, they denied auths for scans that would have told me where I was at in terms of my lymphoma. Friday I will finally be able to have my first scan to see if the radiation has helped or it continues to spread and more aggressive treatment is needed. I’m pretty sure of the answer as I have already found a new lump on my abdomen. Sometimes this stuff scares the crap out of me. I just want to be pain free for awhile and not find any more growths.
Merry Christmas to you or in Swedish, God Jul. Praying that you are all able to spend time with loved ones, whether friends or family and are able to find some blessing in this holiday season.
As this Christmas season is here, I am grateful for so many things but am most grateful for just another day to spend with the people I care about. I’m thankful for one of the most memorable holiday seasons in my life which I was able to share with my significant other and our families and friends. I am grateful for medical doctors who can tell us we’re seriously ill before it becomes terminal. I’m thankful for the small little ways that our friends and family show us that they love us and the medical treatments that prolong the lives of cancer patients no matter how difficult they are.
And though my focus has been on myself and trying to meet my own needs since getting the cancer diagnosis, I hope to be able to return to blogging every day to every other day once I get my energy level back. But plus know, I am choosing gratitude as my outlook. I have so many things to be grateful for. Housing, a job, Al (my dog), my significant other who is amazing, my friends and family, the people I work with, etc. ,and all of you.
What are you most grateful for? Please understand that I may not be able to to post much on my blog until I gain some strength and energy.
I have not felt well since I had bronchitis for six to eight weeks this August and September. I remained exhausted after my lung x-ray cleared and still was fighting a nasty cough that would not go away. My lymph nodes have been swollen since this summer. I sleep as soon as I get done eating dinner. I finally started to push the doctor on why I felt so bad and the answer has been a little overwhelming. It is the reason I have not been blogging. I am looking at a lymphoma diagnosis that appears to be spread throughout my body. I have been in a lot of pain and discomfort especially in the bones Ive broken before. I am not one to complain about pain but this has been intense at times and unlike anything I be ever gone through. I have tests scheduled for tomorrow and next week for an MRI, Bone Scan, and pet scan. Because of all the appointments and such I reduced my work schedule to four days a week. I was having difficulty making it through a complete work week. I now take a day off towards the middle of the week to rest and rejuvenate to finish the week out with.
There is a tumor on my adrenal gland and another on my pituitary gland. It makes for crazy hormone levels.
But one of my strengths is resiliency. I am a fighter. I have managed to tell most people around me and start accepting their help. That’s a tad bit more difficult for me to do.
So bear with me as I go through the next few weeks.
Thank you all so much. I now have over 100 followers on my blog. I couldn’t have done this without you!!!!
You inspire me to keep going and sharing even when things are difficult. I appreciate your feedback and support and kind words of encouragement.
Thanks for helping me making this milestone happen.