Sometimes it seems when you have chronic illnesses there is nothing worse than having to switch insurance companies in the middle of treatment. Right now I am in a waiting game because I have new insurance and can’t get the treatment that I need because new authorizations aren’t in place yet with the new insurance company.
During the last few days of my old insurance coverage, they denied auths for scans that would have told me where I was at in terms of my lymphoma. Friday I will finally be able to have my first scan to see if the radiation has helped or it continues to spread and more aggressive treatment is needed. I’m pretty sure of the answer as I have already found a new lump on my abdomen. Sometimes this stuff scares the crap out of me. I just want to be pain free for awhile and not find any more growths.
Merry Christmas to you or in Swedish, God Jul. Praying that you are all able to spend time with loved ones, whether friends or family and are able to find some blessing in this holiday season.
As this Christmas season is here, I am grateful for so many things but am most grateful for just another day to spend with the people I care about. I’m thankful for one of the most memorable holiday seasons in my life which I was able to share with my significant other and our families and friends. I am grateful for medical doctors who can tell us we’re seriously ill before it becomes terminal. I’m thankful for the small little ways that our friends and family show us that they love us and the medical treatments that prolong the lives of cancer patients no matter how difficult they are.
And though my focus has been on myself and trying to meet my own needs since getting the cancer diagnosis, I hope to be able to return to blogging every day to every other day once I get my energy level back. But plus know, I am choosing gratitude as my outlook. I have so many things to be grateful for. Housing, a job, Al (my dog), my significant other who is amazing, my friends and family, the people I work with, etc. ,and all of you.
What are you most grateful for? Please understand that I may not be able to to post much on my blog until I gain some strength and energy.
I have not felt well since I had bronchitis for six to eight weeks this August and September. I remained exhausted after my lung x-ray cleared and still was fighting a nasty cough that would not go away. My lymph nodes have been swollen since this summer. I sleep as soon as I get done eating dinner. I finally started to push the doctor on why I felt so bad and the answer has been a little overwhelming. It is the reason I have not been blogging. I am looking at a lymphoma diagnosis that appears to be spread throughout my body. I have been in a lot of pain and discomfort especially in the bones Ive broken before. I am not one to complain about pain but this has been intense at times and unlike anything I be ever gone through. I have tests scheduled for tomorrow and next week for an MRI, Bone Scan, and pet scan. Because of all the appointments and such I reduced my work schedule to four days a week. I was having difficulty making it through a complete work week. I now take a day off towards the middle of the week to rest and rejuvenate to finish the week out with.
There is a tumor on my adrenal gland and another on my pituitary gland. It makes for crazy hormone levels.
But one of my strengths is resiliency. I am a fighter. I have managed to tell most people around me and start accepting their help. That’s a tad bit more difficult for me to do.
So bear with me as I go through the next few weeks.
Thank you all so much. I now have over 100 followers on my blog. I couldn’t have done this without you!!!!
You inspire me to keep going and sharing even when things are difficult. I appreciate your feedback and support and kind words of encouragement.
Thanks for helping me making this milestone happen.
I gave in and cancelled as many of my commitments as I could today before I reached a total and complete meltdown. I was terrified of doing that and the consequences but I was no space to handle anyone else’s issues let alone attempt to manage my own this morning. Sometimes saying I can’t is a strength rather than a sign of weakness.
This was the best choice for me today. I needed a stained glass kind of day where I picked up the broken pieces to put some semblance of order back into my life. I had my significant other come over at 5 a.m. this morning to be with me as I was starting to fall apart and have a complete and total meltdown. I only kept my appointment with my therapist for this afternoon. I figured it was necessary at this point. Tried taking a nap and even took meds to calm down to facilitate this and I am still wife awake but the feelings of panic and depression have subsided some since I did. I’m grateful my partner came here after arriving home late last night. I think it was good for me not to be alone and have the extra support. I needed it and was heading into dire straits in terms of both my physical and emotional health. I cannot say enough about good self care…eating, drinking water, getting sleep, taking meds consistently, and not bottling up problems. I forgot some of these this week and paid dearly yesterday and today for it. When life is feeling like it is reaching a breaking point, remember to step back, sweep up the pieces and create stained glass my friends. There is only one you.
While I feel better able to breathe tonight, I cannot get any sleep which leads me to wonder if maniac isn’t starting to set in due to too many sleepless nights because of the pneumonia. It is the very last thing I need to have happen right now.
I managed to work 11.5 hours yesterday despite feeling crappy. I felt spent afterward.
I just kept plugging away though because I knew it would be seeing my significant other after work for the first time in days and we had plans to go to the local festival last night. We went to enjoy some of the activities and by the time we finished dinner and bsat down we we’re both spent. I was just glad to be with them after a few days apart. Due to my pFSD issues, I don’t handle our time apart very wey well. Hopefully it will be a quiet w3ekemdso I can recuperate.