Infections, E.R. visits, and home from work.

Last week I caught a bacterial infection. It took 3 days for the culture to get back. The practitioner I saw wanted to wait for the results of the culture to start antibiotics. This infection has led to so many things this week I could scream. I haven’t worked since last Tuesday except for paperwork from home. I ended getting IVIG on Saturday and we thought it would help but it didn’t make much impact. I had emesis (a nice word for vomiting) start on Saturday night and continue into Monday and couldn’t get in to see my doctor on Monday. I ended up in the ER by Monday evening for dehydration and tests. They did more tests and cultures on my blood to make sure that I didn’t have sepsis going on. I am still running a fever and feel like death but the preliminary report showed no acute sepsis starting. Yeah! I have pretty much been in bed for a week now. My temp was higher today than all the rest and my doctor is out of the office. The on call doctor is supposed to call…any minute now… It is not fun to go to the doctor as a zebra🦓 (Common Variable Immune Deficiency- CVID patient) let alone one with other issues going on. It takes forever to tell the doctor my hx and I am sick of doctors, hospitals, and illnesses I am ready to revolt.

I supposed to go back to work tomorrow. I am suppose to be calling/ seeing the doctor tomorrow. I still feel wonderful with a temperature. (Yes I am being sarcastic 😜). So I am not sure who will win tomorrow’s battle. Add on top tried to decrease my antidepressant the last ten days, and I am officially certifiable. (Meeting criteria for psychiatric hospitalization.) I jest but have felt quite out of it at times because of where the infection is at and decreasing my antidepressant.

Work is not going well and for all I know, I could lose my job tomorrow as well since I have no more FMLA (a medical leave in the USA for 90 days once every 365 days.) Loss of employment means immediate loss of health insurance benefits. So while trying to function and keep a little positivity, tomorrow might really suck. It feels (not necessarily reality) – just feels- pretty cruddy and lonely right now. I have only vented to two other people so bear with me as whine tonight.

Hope you all are well and enjoying the weather. Tomorrow here is supposed to be really nice. I think I will write a “I am grateful for list” tonight. Weather and Al (my dog) are easy starting points.

Love W.L.

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